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SELF – ESTEEM IN PATIENTS WITH Β – THALASSEMIA MAJOR

Konstantinos Koukourikos, Maria Tsironi, Aspasia Panagiotou


Sunday, October 1, 2023

Publication year:

2023

Authors:

Keywords index:

Pages: 348-353

DOI: 10.5281/zenodo.13208356

Abstract:

Introduction:  Thalassemia major is a genetic condition caused by the formation of faulty hemoglobin chains. Those affected by this disease experience a range of severe symptoms, including heart complications, enlarged spleen, developmental delays, characteristic facial features, and severe anemia. The chronic nature of this condition, combined with its demanding treatment process, can significantly affect an individual's self-confidence, self-esteem, and psychosocial well-being. Aim: The objective of this study is to investigate how thalassemia affects the self-esteem of patients. Methodology: A comprehensive review of both Greek and international literature on the topic was conducted, using the following keywords: beta-thalassemia major, transfusions, and self-esteem. The review was carried out using various electronic databases such as PubMed, Scopus, Medline, Google Scholar, and the Association of Greek Academic Libraries (HEAL-Link). Results: Individuals with thalassemia major encounter distinctive psychosocial hurdles because of the ongoing nature of the illness, reliance on transfusions, and varied symptoms. Often, patients undergo sentiments of inadequacy and behavioral issues, along with melancholy, apathy, and irritability. Such emotions can have a detrimental effect on the patient's self-worth, resulting in self-criticism and influencing their adherence to treatment and interactions with their surroundings. Conclusions: Thalassemia major can have a substantial impact on the self-esteem of individuals of all ages. By adopting a comprehensive patient care approach, that addresses not just the physical symptoms of the condition but also its psychological facets, patients can better adjust to the disease and its management.

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